Notice of The Canadian Arthritis Patient Alliance Annual General Meeting March 27, 2013, 5:00 pm EDT
Dial in information:
Toll free Dial-in: 1-866-512-0904 Participant Pass Code: 4930414
Review and approval of the agenda
Fiscal 12 Compiled Financial Statements and Notice to Reader
Appointment of Auditors
Report of Directors
Election of New Directors
To kick off National Pain Awareness Week 2011, the Canadian Pain Coalition hosted two symposia entitled Transitions: Living Well with Chronic Pain.
The events, held in Saskatoon on November 5 and Calgary on November 6, were very successful with over 200 attendees at each location. We are emailing you today to let you know that we have updated the Live Well With Pain site with insights, videos, discussion summaries and more collected from both events.
We hope that you will find the information and resources on the site to be helpful for you in managing chronic pain more effectively. We ask that our member organizations and health professional members share this site with their members and clients so that as many Canadians as possible can benefit from the knowledge and expertise of the pain experts who were involved in the symposia.
What will people discover when visiting Live Well With Pain?
During the events, attendees participated in group workshops where they had an opportunity to brainstorm ideas for managing pain by using a pain plan. These strategies and a template of the pain plan can now be found online, as well as resources including a pain journal. We have included information about how to get involved and add your voice to the national discussion to ensure chronic pain is recognized and managed more effectively.
There are also a number of videos available online. The first is a video taken from the Calgary symposium that includes clips from the speaker presentations and relaxation session.
The second set of videos includes our pain experts answering questions submitted by event participants. This is a great video series about managing pain. We expect our members will find them interesting and helpful to watch.
We encourage you to go through the site and please share the link with anyone who is touched by pain.
From the Arthritis Alliance of Canada. The Canadian Arthritis Patients Alliance strongly urges you to read the report and then to contact your Federal and Provincial politicians to demand action on this crisis now.
New Report Indicates Arthritis is a $33 Billion Burden on Canadians
Arthritis Alliance of Canada Calls for Governments, Healthcare Communities to Work Together
**QUEBEC CITY, Oct. 27, 2011 /CNW/ **- Although it has been described as an invisible disease, the impact of arthritis on the Canadian economy can't be ignored. A new report from the Arthritis Alliance of Canada (AAC) estimates that osteoarthritis (OA) - the most prevalent form of the disease - and rheumatoid arthritis (RA) costs the Canadian economy $33 billion through (direct) healthcare expenses and (indirect) lost productivity and taxes. The Impact of Arthritis in Canada: Today and Over the Next 30 Years provides a detailed look at the impact of arthritis and offers solutions on how to mitigate and manage the situation.
The report reveals many surprising findings about the prevalence of arthritis in Canada now and in the future, and the overall cost of the disease to the healthcare system, including:
- There are currently more than 4.4 million people living with OA. In 30 years, more than 10 million or one in four Canadians is expected to have OA. Within a generation (in 30 years), there will be a new diagnosis of OA every 60 seconds.
- There are currently more than 272,000 people living with rheumatoid arthritis (RA), comprising 0.9% of the Canadian adult population, which will increase to 1.3% over the next 30 years.
- At present:
- Arthritis drives $12.6 billion in direct healthcare costs ($10.2 billion for OA; $2.4 billion for RA) which represents healthcare expenses
- Arthritis drives $20.6 billion in indirect healthcare costs ($17.3 billion for OA; $3.3 billion for RA) which represents lost productivity and taxes
Which means that based on 2010 data, the burden of arthritis on the Canadian economy is $33.2 billion in direct and indirect healthcare costs. These numbers will only grow.
The report is being unveiled today at a scientific conference, in Quebec City, that brings together 400 members of the Canadian arthritis community who will spend the next two days discussing the findings of the Impact report as well as themes that include: the future of the arthritis community; inflammation in chronic diseases; the patient experience within complex disease management and care; epigenetics; rarer forms of arthritis; and, personalized medicine.
"The findings of this report will come as a shock to some in the arthritis community because the numbers are higher than what we've seen before," explains Dr. Claire Bombardier, Co-Scientific Director of the Canadian Arthritis Network and one of the lead authors on the report. "Unveiling the report at the 2011 Annual Scientific Conference will allow the best minds in the arthritis community to grapple with the issues and work out how the community can move forward together to help patients, support government and alleviate the burden on the healthcare system."
"Too many people dismiss arthritis as an old person's disease," says Dr. Dianne Mosher, Chair of the Arthritis Alliance of Canada and one of the lead authors on the report. "Canadians need to understand that these diseases are painful and debilitating. They can affect anyone, at any age. Arthritis is profoundly affecting individuals in our communities. Over the long-term, it will have a tremendous impact on our healthcare system, labour force and economy. This Report quantifies the very real personal and economic costs of arthritis and outlines some measurable actions we can take today to manage the impact tomorrow."
The Impact report puts forward four potential arthritis interventions to mitigate the burden of the disease and manage the impact arthritis could have, if left unchecked, over the next three decades. Implementing these interventions is expected to save the healthcare system more than $700 million over the next 30 years.
To respond to the findings in the report, the AAC is proposing a National Framework for Arthritis that will increase the efficiency of care and management of people living with the disease; implement effective measures to prevent disease onset; increase awareness of the full cost of arthritis to the individual and society; and, establish priorities for ongoing research.
About the Arthritis Alliance of Canada
The Arthritis Alliance of Canada was formed in 2002 as the Alliance for the Canadian Arthritis Program (ACAP). Its goal is to improve the lives of Canadians living with arthritis by working toward improved access to care and treatment, broadened education of the arthritis community and public and health policy makers, as well as increased arthritis research.
The Alliance includes more than 20 member organizations from across Canada, bringing together arthritis consumers and consumer organizations, arthritis health care professionals, researchers, funding agencies, governments, voluntary sector agencies and industry. While each member organization continues its own work, the Alliance provides a central focus for national arthritis-related initiatives.
About the Canadian Arthritis Network
The Canadian Arthritis Network (CAN) is a not-for-profit organization, funded by the Government of Canada's Networks of Centres of Excellence (www.nce.gc.ca), to support arthritis research and development and to facilitate the commercialization of its Network Investigators' discoveries. CAN is the single point of contact that links over 200 leading Canadian arthritis researchers and clinicians, 45 Canadian academic institutions, The Arthritis Society, pharmaceutical and biotechnology companies, and government.
The Impact of Arthritis in Canada: Today and Over the Next 30 Years
Research Report Released by the Arthritis Alliance of Canada
LIVING WITH ARTHRITIS: A DAILY STRUGGLE
Arthritis is a chronic disease with devastating and debilitating effects for the more than 4.6 million Canadians who live with it. The Impact of Arthritis in Canada: Today and Over the Next 30 Years report focuses on the two main forms of arthritis:
- Osteoarthritis (OA) a progressive disease where joint tissues are unable to repair themselves resulting in significant damage to cartilage and bone; and
- Rheumatoid Arthritis (RA) the most common form of inflammatory arthritis that affects the joints in the body.
Over the next 20 years, the number of Canadians with OA is expected to double from 4.4 million to more than 10 million or one in four Canadians. Currently, there are more than 272,000 people living with RA, comprising 0.9 per cent of the adult population. The number of Canadians diagnosed with RA is expected to increase as Canadians age and by 2040 is projected to comprise 1.3 per cent of the population.
MANAGING THE IMPACT OF ARTHRITIS
Arthritis directly affects the Canadian economy since the disease can result in disabilities that impede an individual's ability to fully participate in the workforce. Today, 1 in 8 workers (11.93 per cent of the Canadian workforce) has OA and one in 136 workers has RA. The Arthritis Alliance of Canada's report estimates that OA alone costs the Canadian economy $27.5 billion (in direct and indirect costs). That number is expected to more than double in the next 20 years. Add that to the $5.7 (in direct and indirect costs) for RA and the total current cost of arthritis to the Canadian economy is $33.2 billion. These numbers will only grow.
The report also finds that if potential interventions and strategies are implemented, it would not only result in significant direct and indirect cost savings of valuable health care dollars, but also and more importantly, reduce the burden and consequences of the disease for Canadians living with arthritis. Four potential targeted interventions are examined in the report: three for OA and one for RA.
- Total Joint Replacement (TJR) intervention
- Reduction of obesity rates in Canada
- Adequate pain management strategies
- Early diagnosis and treatment with cost-effective Disease Modifying Anti-Rheumatic Drugs (DMARDs) and for those who do not respond to traditional DMARDs, access to Biologic Response Modifiers (Biologics) for RA
The four interventions identified in the report are only the beginning of what needs to be done.
BUILDING A NATIONAL FRAMEWORK
Based on the findings of the report, the ACC hopes to work with governments and the broader healthcare community to build a National Framework for Arthritis. The Framework will establish research priorities and strategies, identify principles to guide the design and delivery of care, suggest prevention strategies, and propose an ongoing mechanism for the arthritis community to dialogue with governments and the broader healthcare community. To date, the arthritis community has done a lot of work to collaboratively identify solutions. The next step is for governments and the broader healthcare community to engage in the discussion. We need the support of both these groups to ensure we are able to achieve meaningful change.
Now is the time.
For further information:
For more information about the Impact of Arthritis Report, the Arthritis Alliance of Canada, or to schedule interviews with Alliance members please contact:
To download a copy of the Report, please visit www.arthritisalliance.ca
For more information about the 2011 Annual Scientific Conference, please contact:
Director of Communications
Canadian Arthritis Network
October 26-30, please call 416-712-4448 (cell)
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Your link to living well with chronic conditions and disabilities
A cross-sector collaboration to empower people and their caregivers to navigate the maze and live well with complex chronic conditions and episodic disabilities
People living with complex chronic illnesses and episodic disabilities need help to access and navigate the healthcare system and beyond; including the maze of disability income, social services, and information needed to live well while living with their conditions.
Health Gateway Healthgateway.ca is an Ontario-focused, accessible web-based e-library, for people living with complex chronic illnesses and episodic disabilities and their caregivers that connects them to the resources that meet their needs, wherever they are in their care journey.
Health Gateway facilitates access to important information that people need to manage their health and daily living needs including housing and employment information, income support, equipment, services, support and funding. It links users to a broad range of information from vetted and approved sources.
Whether in hospital, rehab, or in the community, the Health Gateway portal helps people living with complex illnesses and episodic disabilities and their caregivers navigate the maze of services and supports across the care continuum to get them the answers they need quickly. It is also a tool for healthcare and other professionals to support their clients. In a recent survey, users described Health Gateway as a “one-stop-shop that will make it easy for people to find what they need”.
Funded in part from the Ontario Trillium Foundation, an agency of the Government of Ontario, and Sun Life Financial, Health Gateway is the result of collaboration between Bridgepoint Health and the Canadian Working Group on HIV and Rehabilitation (CWGHR).
Votre lien du mieux vivre avec des maladies et invalidités chroniques
Une collaboration intersectorielle pour habiliter les personnes qui vivent avec des maladies chroniques complexes et des invalidités épisodiques, ainsi que les personnes qui en prennent soin, à trouver leur chemin dans le dédale de la vie et à mieux vivre.
Les personnes qui vivent avec des maladies chroniques complexes et des invalidités épisodiques ont besoin d'aide pour accéder et naviguer à l'intérieur du système des soins de santé et au-delà, y compris dans le labyrinthe des programmes d'assurance invalidité, des services sociaux et de l'information nécessaire pour bien vivre avec leurs maladies.
Portail santé Portail sante est une bibliothèque électronique centrée sur l'Ontario, accessible sur Internet, à l'intention des personnes qui vivent avec des maladies chroniques complexes et des invalidités épisodiques, ainsi que des personnes qui en prennent soin; cette bibliothèque électronique les met en rapport avec des ressources qui répondent à leurs besoins, où qu'elles se trouvent dans leur cheminement au sein du système de santé.
Portail santé facilite l'accès aux renseignements importants dont ces personnes dépendent pour prendre leur santé en charge et gérer les besoins de leur vie quotidienne, notamment des renseignements sur le logement et l'emploi, le soutien du revenu, les dispositifs d’aide, les services, le soutien et l'aide financière. Le site donne accès à une vaste gamme de renseignements de sources validées et approuvées.
Dans un hôpital, dans un centre de réadaptation ou dans la communauté, Portail santé aide les personnes qui vivent avec des maladies complexes et des invalidités épisodiques, ainsi que les personnes qui en prennent soin, à trouver les services, mesures de soutien et réponses nécessaires rapidement dans le dédale du continuum des soins. C'est aussi un outil pour les professionnels des soins de santé et autres professionnels qui veulent aider leurs clients. Dans un récent sondage, les utilisateurs ont décrit Portail santé comme un guichet unique où trouver facilement ce dont ils ont besoin.
Financé en partie par la Fondation Trillium de l'Ontario, une agence du gouvernement de l’Ontario, et la Financière Sun Life, Portail santé est issu d'une collaboration entre Bridgepoint Health et le Groupe de travail canadien sur le VIH et la réinsertion sociale (GTCVRS).
September is Arthritis Awareness Month and CAPA has an update for you.
Join the webinar "Mindfulness Based Stress Reduction as a Strategy in Reducing Pain" on September 28th.
This 45 minute webinar, co-sponsored by the Canadian Institute for the Relief of Pain and Disability, Pain BC and the Canadian Pain Coalition, will provide an introduction to the power of mindfulness based stress reduction (MBSR) as a simple technique that can be employed in a variety of ways to improve overall wellness and to help in managing chronic pain.
The webinar is being held on September 28th, 2011 - 2:00 PM (PDT).
Register @ http://cirpd.org/GetInvolved/Webinars/Pages/MBSRWebinar.aspx
for Relief of Physical and Existential Pain
in Women Diagnosed with Rheumatoid Arthritis
Researcher: Mady Mooney
You are invited to be part of a research study that will explore the potential of art therapy to relieve pain for women with rheumatoid arthritis. The study will be undertaken by Mady Mooney as a requirement for her degree in the Master of Arts in Pastoral Psychology and Counselling program (Art Therapy specialization) at St. Stephen's College.
What would be your role in the study?
If you participate in this study, you will take part in a four-hour workshop with 7 other women. With the guidance of two experienced facilitators, you will make two works of art (mandalas) using paint or colouring pencils. After the first mandala, you will do some journalling.
A week or two after the workshop, you will participate in a one-hour interview about what you experienced during the workshop.
Absolutely no art experience is required! If you’ve never done this kind of thing before, it’s an opportunity to do something new that’s easy and fun.
To participate in the study, you must be:
- female,18 years old or older
- diagnosed with rheumatoid arthritis
- experiencing pain, flare-ups, or chronic pain
- able to speak and understand English
- able and willing to engage in art making
- willing to have a post-workshop interview
Participation in this study is voluntary.
For more information please contact:
This study has been approved by the St. Stephen’s Research Ethics Committee and is being conducted under the supervision of Dr. Pamela Brett-MacLean, Director, Arts & Humanities in Health & Medicine Program in the Faculty of Medicine & Dentistry at the University of Alberta (firstname.lastname@example.org)
Canadian Pain Coalition presents:
FALL PAIN FORUMS
Learn from Pain Experts:
- the myths and facts of chronic pain
- how to manage your pain
- how to communicate about your pain
This event is FREE. Donations to the CPC Pennies for Pain Campaign are welcome. Join CPC for a public forum near you.
Register online at www.chronic-pain.ca
- September 28, 2011 - Sault Ste. Marie
- October 4, 2011 - Niagara Falls
- November 10, 2011 - Kitchener
For more information, download:
YHES! The Young Adult, Health & Employment Study
Young adults between the ages of 18 and 30 years living with juvenile arthritis and lupus are invited to participate in an online survey about the experience of finding and keeping paid work. This study is being conducted out of the Dalla Lana School of Public Health at the University of Toronto and the University Health Network.
All Canadian young adults living with juvenile arthritis or lupus are encouraged to participate, whether they are employed, not currently working or have never held a job.
For more information on how to participate, please contact:
Toll Free: 1-855-469-4540
Website at www.yhes.ca.
Based on the Arthritis Self-Management Program, this workshop introduces participants to self-management skills and the principles of pain-management.
Date: Thursday, September 29, 2011
Time: 1:00 pm - 3:00 pm
Venue: Kitsilano Community Centre
2690 Larch Street, Vancouver
To register for this program click here or call 604.714.5550