Call for participation

E-consultation on Registration and Disclosure of Clinical Trial Information
You Are Invited to Participate

In June, Health Canada's Health Products and Food Branch (HPFB) advised stakeholders of a forthcoming e-consultation regarding the registration and disclosure of clinical trial information.

HPFB is pleased to announce today the launch of the e-consultation, which will run from June 15 to July 7, 2006. You are invited to participate in the e-consultation by completing the accompanying online workbook. To access the online workbook, please click on the following link https://questionnaire.gc.ca/coe?P=/hc/hpfb/hpfb_ei.htm&Qu=20148, and follow the instructions provided. The online workbook will take approximately 30 minutes to complete. We request that you complete the workbook prior to July 7. Participants' identity and information will remain strictly confidential.

The results from the on-line workbook will be posted on the Health Canada website at: http://www.hc-sc.gc.ca/dhp-mps/prodpharma/activit/proj/enreg-clini-info/index_e.html. For further information, please contact us at: clinical_trials_consultations@hc-sc.gc.ca For technical assistance, please contact surveys-sondages@pwgsc.gc.ca

Arthritis, Parenting and Household Work

The Arthritis Research Centre of Canada is seeking help to pilot test a survey for a research project. The following information will help you decide if you are eligible and interested. It involves completing a survey (on paper mailed to you) with questions about your health status, caring for your children and managing a household. It will take about 90 minutes to 2 hours of your time. You may be eligible to help if you:

1. have rheumatoid arthritis or psoriatic arthritis
2. are a mother with at least one child under 21 years of age living at home

If you would like to volunteer or get more information, contact: Linda Del Fabro Smith, Research Assistant, 604-871-4564 e-mail ldelfabro-smith@arthritisresearch.ca.

The study is being conducted by Dr. Catherine Backman, UBC Rehabilitation Medicine, Arthritis Research Centre of Canada.

Impact of Personal Relationships on Coping with Chronic Illness

Researchers at Brock University are launching a study to determine how people cope with serious chronic illnesses such as arthritis, particularly through their personal relationships with others. While it is well known that people who have strong social ties have better health and recovery, we do not well understand the pathways by which this occurs. Through the survey responses of people who actually cope with such conditions, researchers hope to better understand these processes and how to help them. Anyone suffering from a chronic illness such as arthritis is encouraged to participate in this research - location of residence is not a concern, as the researchers would like to have participants from all over the world. To learn more about participating in this online study, visit www.brocku.ca/niagarahealthstudy.

Taking it to the Street
ROAR (Roundtable On Arthritis Research)

What changes would occur at school, at work, and in your home if current evidence-based research and best practices guidelines were applied effectively? Join arthritis research scientists, patients, consumers and their family members at the Roundtable On Arthritis Research being held at the Arbutus Club in Vancouver, BC on September 30th. Participate in discussions on:

• Improving care for people with arthritis – measuring what matters. How do we get there?
• How much exercise is enough?
• Glucosamine – is it worth it?
• Parenting and household work. What is the impact of arthritis on mothers?
• Making it work. Getting employed and staying employed

Stayed tuned for registration details on http://www.arthritisresearch.ca